But from everlasting to everlasting the LORD's love is with those who fear him and his righteousness with their children's children . . . Psalm 103:17

Saturday, August 25, 2012

Seth's lungs; new baby pictures

Dear family (which it feels like you've now all become, even if unofficially),

Seth's lungs had water on them today, so the nurse practitioner put him on a diuretic. Thank God, the second x-ray was much better. He still looks and acts great, he's just needing more help from the ventilator again, with higher oxygen needs, higher carbon dioxide in his blood, and a higher setting on the mean airway pressure. It's tempting to get discouraged, but the NICU staff has been great in reminding me to be patient, and I've been listening to sermons on prayer and reading verses that remind me WHO God is, and who we are in Him and to Him through His Son. Which is not to say it's easy to see my little son grimace instead of cry and not be able to hold him. :( But he does seem to really be comforted by my hands on him, by singing praise songs, and by praying and talking soothingly. So that's one huge praise. So is the fact that he remains infection-free. Thanks for praying!!

Grace may be extubated in a few days! I hope and pray so! She's not needing much oxygen and is now on oral feeds only (via tube). She got her PICC line out today; no more intravenous nutrition! Marcie, too, got her Broviac out and is on oral feeds only. The boys all are on full feeds, too, but Seth still has his PICC line so he can receive his medications. The other boys don't need medications, thank God. We pray Seth joins them too.

The nurse practitioners and nurses continue to say how great it is that our babies tolerate their feeds and gain weight well. Thank God! Again, it's critical that Seth especially get the nutrition he needs (they add enricher to my milk for all the babies) so that his lungs can grow faster than the machine/oxygen can damage them. We would ask that each of the babies is off of oxygen by 36 weeks - exactly 6 weeks from today! - Lord willing.

From yesterday and today:

Seth

Marcie having a snooze

Gracie-kins

Marcie again

David

Will in my arms (he gets too hot if I cover him too much!)

Tired Will and tired but very happy Mom

20 comments:

  1. This comment has been removed by the author.

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    1. oops - thought I should do this under my own name - re-posted from my account below.

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  2. What beautiful babies!!!! Thank you for sharing your journey and your prayer needs. Know that there are people all over the world praying with and for you (many through Wycliffe/SIL/Mission connections) - and some more added in Australia and Hungary this weekend. May God continue to give you enough strength to get through what each new day (hour, minute) brings.

    August 26, 2012 8:26 AM

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  3. It is cute the way Marcie has her legs stretched way out!

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  4. Praying for you in Amarillo TX. I have been watching your story for a long time now. I am a mom of 4 one of whom has Down syndrome and a grandmom to 7. I am so excited to hear of your babe's progress but want you to know that I also think about you as parents and as you correctly put it...the roller coaster of the NICU. I send you smiles and some extra hugs for Seth.

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  5. Praying for you in Grand Rapids, Michigan. I continue to pray for you and your children. How I pray God's blessings on all of you, particularly on little Seth! May God continue to be gracious to you all.

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  6. BEAUTIFUL,BEAUTIFUL,BEAUTIFUL BABIES,,Continued prayers that God is in control of the Babies, especially for the Special needs of Seth, and God Please Surround Gavin, Carrie, and Issac with you Love Peace and Grace during this time..... Just to let you know that people from Dayton Ohio are praying also..

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  7. they are looking bigger and so cute. and im so thankful that you get to hold most of them now. im praying, praying, praying for your family.

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  8. Remember those days in the PICU well, even after 26 years and we had only one, so can't imagine how hard it is with these 5 precious little ones. Praying for strength, growth, and less reliance on the vents for the babes, and Amening and praising God for their progress. Also, praying that the 2 of you get the rest and support you need, as well as the time you need for Isaac. NKL

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  9. They are all soooo adorable Carrie! Kisses to the whole family! -- Aileen

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Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

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