But from everlasting to everlasting the LORD's love is with those who fear him and his righteousness with their children's children . . . Psalm 103:17

Monday, September 17, 2012

Update, Monday Sept 17th

Hi all,

Thanks for your continuing prayers, especially for Seth. His carbon dioxide has been in the 60s since Saturday night, I think, and he's needing anywhere from 48-65% oxygen. His machine settings were weaned a little bit, which probably explains the changes.

This is a constant balancing act for the doctors and roller-coaster for us! I don't even know how often to post, things change so quickly. I get excited and post, only to have the numbers look worse again in a few hours. Rest assured I will post (or Gavin will) the instant anything urgent happens, but basically Seth's needs are ongoing and serious. Even his "good" days, for which we are grateful, are days of needing lots of specialized machine support and opiates to help him stay comfortable. I am SO grateful for pain medication for my little guy!

Some pictures:




My dad's hand and mine

He was smiling in his sleep and looks like he's laughing in this photo!

Happy news:

David is in an open crib and back on cannula, no oxygen, and doing great! 
Marcie is doing really well on lowered CPAP settings, no oxygen needed, and is gaining weight slowly but steadily.
Will is getting some oxygen but is also only on cannula still and in an open crib. Fun!
Grace is on CPAP still rather than the vent, although she is having some "normal" preemie apnea and bradycardia we pray goes away.


Gracie needs to gain weight, so please pray for that. She's actually lost 3 ounces over the past few days. The move between hospitals was stressful for her.

Isaac is doing really well. I am fighting a sore throat so will be wearing the face mask when I visit the NICU. Gavin is working part-time at the Center here in Dallas and is at the NICU part-time, of course, not to mention parenting Isaac before and after school. I am at the NICU every day for a few hours, which I love. 

Thank you all for your prayers and every way in which you are standing with us and encouraging us!
Carrie


6 comments:

  1. Lord, You know the needs of Seth and the other precious babes, and we pray that You will heal their little lungs, help them to gain weight and keep them from lasting bad effects from their premature birth. Please guide and direct the doctors and all who care for Seth, Will, David, Gracie and Marcie, so that the best outcome for each is accomplished. And give Carrie and Gavin the strength and support they need as they travel this road. Praising and thanking You, Lord, for your grace and mercy. Amen. NKL

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  2. Anonymous, I come into full agreement with you. I could not have pray any more specific. All to the Glory of our Father God. In Jesus Name; AMEN!

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  3. Thank you so much for taking precious time to update us. So happy to hear Will, David, Marcie, and Gracie are doing so well. Will continue to pray for them and especially for Gracie to gain weight. I pray for baby Seth of and on all day. I pray he has good rapid lung growth and can get back on the regular vent. I love the picture where he is smiling. I know this is a rough roller coaster ride for all of you and with things changing so rapidly back and forth it is very hard. Please know even if there are no new updates we are still praying hard for your tiny little guy and all the babies, you, Gavin, and Isaac.

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  4. Dear Carrie,

    Please post as often as you like but please don't feel the pressure to do so. It's always great to hear from you but please know that prayers are going up on behalf of you and your family even when we don't hear from you.

    I just read the post from "Just Me" above and she said practically the same thing. So out of two or three the word is established!!!!

    Blessings to you,

    Gail Boemker
    JAARS
    Waxhaw, North Carolina

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  5. I have to agree with Gail! Post when you can, but know that prayers will ALWAYS continue for your beautiful babies and your entire family ALL the time! I just feel deep in my soul that our Father has some awesome things to do through these children and is with them always....you'll never see me, know me or many that are praying for you all...but know we all care and have grown to love these precious little bundles as if they were our own family! You all are on the prayer list at church as well as several Christian groups I lead...always in prayer for you all....

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  6. Seth-you are so precious. I know God is with you.. I pray you will soon be strong. Gavin and Carrie, please don't worry about posting everyday. We all love to hear how the babies are doing but don't want you stressing out. Please take some time for yourself if it is the few minutes that you would be posting. Love you and continue to pray for all of you. Love Aunt Fay

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Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

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